Erin Poyant

Erin Poyant is a writer, patient, patient advocate, and healthcare educator who is also a gene carrier in the hereditary transthyretin amyloidosis (hATTR) community. Her connection to this condition began during her father's V122I journey, long before she fully understood its weight or her own place in it. Today, Erin works professionally in the amyloidosis space and continues to build community at the grassroots level through storytelling, awareness, and connection. Her writing focuses on the emotional realities that come with genetics, diagnosis, family history, and the quiet uncertainty many individuals carry long before and after they find answers.

She is also a mother and a daughter whose understanding continues to evolve through memory, lived experience, and ongoing learning in the amyloidosis field.

Erin is the founder of #hATTRNextGen™, a culturally grounded movement encouraging early conversations, informed decision-making, and visibility for those navigating hereditary amyloidosis, particularly families affected by the V122I variant.

Connect or learn more: linktr.ee/hATTRNextGen

Click here to read all of Erin's articles on ATTR-Amyloidosis.net