What do you wish others knew about ATTR?
There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the condition, or your personal experience living with it?
Stages of Cardiac Amyloidosis'
thank you for this - we will work on getting more information about specific stages. In the meantime, I wondered if you saw this article that was just published about ATTR-CM - https://attr-amyloidosis.net/living/awareness Would love to hear what you think, and if there's any more information we can provide. - Liz (Team Member)
Hi
, that's an understandable oddity about humans, we want to be able to capture knowledge that lets us feel in control. The truth is, that is never really reasonable to expect. There is so much diversity in the expression of symptoms and response to treatment. - Warmly, Donna (Team Member) That it’s not just the heart, and what my journey looks like doesn’t always match others, the disease does not have a one size fits all.
