What do you wish others knew about ATTR?
There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the condition, or your personal experience living with it?
I have Amyloidosis and plan on living life as long and as functional as I can. It is my treatmentbplan that is helping me but its the mental state that leads the way. I believe we will have new treatments soon and hope it will save lives. 🙏
, I join you in your hopes. I'm glad you are having success with your treatment plan. - Warmly, Donna (Team Member)
There are good days and bad days. Are in reality good hours and bad hours during the course of the day.
I also posted on FB information about ATTR-CM and ATTR-PN. I'm betting that many have the symptons and go undiagnosed thinking it's just seniorits. In my case it was attributed to my prostate cancer radiation treatments. Glad I pushed for and received the actual diagnosis.
, it's wonderful that you are educating others to help them get diagnosed. So many times people experience things and feel alone, finding someone who understands what they are going through, and can maybe point them to an answer, is such a huge help. - Donna (Team Member)
That it lowers your energy significantly.
