What do you wish others knew about ATTR?
There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the condition, or your personal experience living with it?
besides fatigue and shortness of breath what else do other patients suffer from
, while you're waiting for feedback from the community, I wanted to share this article that may be helpful: https://attr-amyloidosis.net/symptoms?_sp=feaccb6a-f8c2-4364-a104-23fb3170a8f7.1791919072884 - Warmly, Donna Team Member)
Anything!
, I see a lot more information being shared about ATTR-CM. Do you feel like people are becoming more aware of ATTR? - Warmly, Donna (Team Member)
There is way too much and to take in and then try to get someone to understand. If you are living with someone that has ATTR it is helpful to listen to what the person who is affected has to say.
, that is a great point! It is hard to find someone that not only listens, but hears, sees and feels you. - Warmly, Donna (Team Member)
That it affects so many systems in your body. It’s not just the heart. It’s the fatigue, the shortness of breath, the numbness and tingling in your hands and feet. Your vision, stomach pain, head pressure.
