What do you wish others knew about ATTR?
There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the condition, or your personal experience living with it?
I am skeptical when I read inspiring messages. I do push forward. I use a walker. I exercise. But I am willing to admit that I am often depressed. I want others to know that many of us do feel sad about having this disease. And that’s real and okay.
Welcome
, we're glad you found us. Depression is, sadly, frequently comorbid in many chronic diseases. And, yes, it is real, and it is okay. Do you have support to help through the low times? - Warmly, Donna (Team Member)
I agree, but sometimes the forward movements seem unreasonable and just staying put feels better. How many travel opportunities have I passed on? Too many.
I have Amyloidosis and plan on living life as long and as functional as I can. It is my treatmentbplan that is helping me but its the mental state that leads the way. I believe we will have new treatments soon and hope it will save lives. 🙏
, I join you in your hopes. I'm glad you are having success with your treatment plan. - Warmly, Donna (Team Member)
There are good days and bad days. Are in reality good hours and bad hours during the course of the day.
