Community Health Leaders

In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with ATTR amyloidosis every day, ATTR-Amyloidosis.net brings you frequent articles, points of view, and advice from leading health leaders and experts.

Faye Adams

I was diagnosed with transthyretin cardiac amyloidosis (ATTR-CM)—a rare, progressive, and currently incurable disease that I inherited from my dad, who passed away from the same condition in 2010. My diagnosis came during one of the loneliest seasons of life, leaving me uncertain about what lay ahead. Read more.

Gregory O'Brien Schwarz

In 2003 when his brother finally had a diagnosis and it was Hereditary Amyloidosis my world was shaken. A new adventure. They began the marathon of digging and learning all they could about this disease. He passed from it 4 years later. Gregory's quest continued and his symptoms became more apparent. It took another 7 years to finally get his diagnosis. Read more.

Erin Poyant

Erin Poyant is a writer, patient, patient advocate, and healthcare educator who is also a gene carrier in the hereditary transthyretin amyloidosis (hATTR) community. Her connection to this condition began during her father's V122I journey, long before she fully understood its weight or her own place in it. Read more.

Sean Riley

Sean Riley was diagnosed with hereditary amyloidosis in March of 2019 and began treatment immediately. In his own words “Although this can be a devastating disease, I felt such a great sense of relief upon finally being diagnosed after a seven-year journey of worsening symptoms. Read more.