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Sean Riley

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By Editorial Team

1 min read

Sean Riley was diagnosed with hereditary amyloidosis in March of 2019 and began treatment immediately. In his own words “Although this can be a devastating disease, I felt such a great sense of relief upon finally being diagnosed after a seven-year journey of worsening symptoms. I feel so fortunate that there are now novel medical treatments available that can slow down or halt the disease progression. I consider my case to be a success story”.

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His symptoms include cardiomyopathy and polyneuropathy. The neuropathy has resulted in muscle weakness and severe orthostatic hypotension. His greatest physical challenge is walking stairs due to muscle atrophy and cardio related fatigue. Sean volunteers as a speaker for the Amyloidosis Speakers Bureau, a non-profit organization whose mission is to help educate the medical community. He resides in New Hampshire with his wonderful wife Robin and their Great Pyrenees dogs Cassie and Julia.

Click here to read all of Sean's articles on ATTR-Amyloidosis.net