What do you wish others knew about ATTR?
There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the condition, or your personal experience living with it?
I wish more people understood the disease and it's symptoms
Your comfort zone shrinks
I am skeptical when I read inspiring messages. I do push forward. I use a walker. I exercise. But I am willing to admit that I am often depressed. I want others to know that many of us do feel sad about having this disease. And that’s real and okay.
Welcome
, we're glad you found us. Depression is, sadly, frequently comorbid in many chronic diseases. And, yes, it is real, and it is okay. Do you have support to help through the low times? - Warmly, Donna (Team Member)
I agree, but sometimes the forward movements seem unreasonable and just staying put feels better. How many travel opportunities have I passed on? Too many.
