Carrying the WeightTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. March. Spring. Renewal...reactionscomments
Ask Questions and Connect: 6 Forums on ATTR Treatment & ManagementSince we launched earlier this year, the forums section of ATTR-Amyloidosis.net has been a place to read conversations, start discussions, and connect...reactionscomments
Trail to Diagnosis… It BeginsWhat is going on? My fingertips were feeling fuzzy, my wrists hurt, and simple tasks with my hands were getting harder. The...reactionscomments
The Beginning of Life After DiagnosisTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. So, there we...reactionscomments
The Moment Our Family Story ChangedTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. Olive Garden, early...reactionscomments
When You Don’t Fit the ATTR-CM MoldI don’t fit the mold. When people picture ATTR-CM, they often imagine an older man, maybe someone who has lived a long...reactions5comments
My Family's Diagnosis Journey: And So, It Begins...It all started in the spring of 2002, my awareness that is. We had left our home of 15 years in Seattle...reactions1comment
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with ATTR amyloidosis often have a...reactionscomments
Rare Disease Day® and ATTR AmyloidosisThe last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness...reactionscomments
A Life Unfolding: The Beauty and Weight of a Slow FarewellI am blessed to be the wife of the love of my life and the proud mom of two extraordinary boys we...reactions6comments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactions2comments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your ATTR diagnosis...reactions6comments
What Does it Mean to be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading...reactions2comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical...reactionscomments
How Do I Get the Latest Updates on ATTR-Amyloidosis.net?The internet is rife with information on ATTR amyloidosis. Unfortunately, sometimes it can get to be a little too much. Perhaps it...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment and/or test work better than existing standard treatments and/or...reactionscomments
ATTR-Amyloidosis.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on ATTR-Amyloidosis.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to discover how our bodies work or why...reactionscomments
Clinical Trial GlossaryClinical trials have a language of their own. If you are considering joining 1 of these studies, it helps to understand the...reactionscomments
