Talking With My Family About ATTR Testing: To Know or Not to KnowThe day I gathered my children was most memorable. "Hey guys," I said. They were both listening. "You know the disease that...reactionscomments
ATTR Progress and Awareness: Maybe We Are Making a Difference After AllI walked into my appointment today carrying more than my purse and a list of medications. I carried nerves. After 15 years...reactionscomments
More Than Just a Vacation: Traveling with hATTRI came home from our cruise with a suitcase full of dirty clothes, way too many pictures, a few impressive bruises, and...reactionscomments
Ask Questions and Connect: Forums and Resources for Supporting a Loved One With ATTRThe forums section of ATTR-Amyloidosis.net has been a place to read conversations, start discussions, and connect with other caregivers and loved ones...reactionscomments
I Believe in Research. So Why Was I Hesitant to Join a Trial?To everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. I believe in...reactionscomments
Time Moves On: Lessons for Living With ATTR AmyloidosisTime wraps me like a scratchy blanket. It has me in an inescapable harness that keeps pulling me forward. I think, "oh...reactionscomments
I’m So Glad I Went: What Happened After I Said YesIn my last article, I shared how transthyretin amyloid cardiomyopathy (ATTR-CM) had changed the way I looked at something that once would...reactionscomments
How to Handle Insurance Denials and LimitsFinding out that your health insurance company has denied a claim can be frustrating and complicated. Understanding what an insurance denial is...reactionscomments
Trail to Diagnosis… It BeginsWhat is going on? My fingertips were feeling fuzzy, my wrists hurt, and simple tasks with my hands were getting harder. The...reactions1comment
Ask Questions and Connect: 6 Forums on ATTR Treatment & ManagementThe forums section of ATTR-Amyloidosis.net has been a place to read conversations, start discussions, and connect with others about ATTR. These forums...reactionscomments
Living with hATTR: Get Moving…Hey, you've been diagnosed with this disease, ATTR amyloidosis. Get over it! Time to get moving and take control. Know that it...reactionscomments
Quality of Life Polls: How are You Doing?When managing ATTR means juggling medications, treatments, and basic daily tasks, quality of life can feel like an afterthought. However, a good...reactionscomments
Discovering My Family's ATTR Story: A Chance MeetingI have the Thr60(80)Ala mutation on the TTR gene on the 18th chromosome. Pretty cool. It causes ATTR amyloidosis. Not cool. 1,600...reactionscomments
Fatigue and Slow Progression: Living Between the Data and the DiagnosisApril is always hard for me. It’s the month we make the trip to Duke, the month where scans, tests, and appointments...reactions3comments
ATTR Progression: A Word We Need to Talk AboutThere is a word that rarely shows up when people talk about transthyretin (ATTR) amyloidosis. Terminal. When you search for information about...reactionscomments
Sponsored: Life With ATTR Amyloidosis: Turning Uncertainty Into ActionBy Alnylam Pharmaceuticals Published May 01, 2026 For many people living with ATTR (transthyretin amyloidosis)—an underdiagnosed disease that involves the buildup of...
Life as a Carrier: Year FourTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. If you’re new...reactions2comments
When ATTR Holds Your Stomach HostageWhen people hear transthyretin amyloid cardiomyopathy (ATTR-CM), they naturally think about the heart. I did too. But one thing this journey has...reactionscomments
Thump Flap: Managing ATTR and PolyneuropathyThump Flap… Strange name, Thump Flap. Well, it’s a bit of a story that took a long time to happen. First off...reactionscomments
The Caregiver No One NamesTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. There is a...reactions11comments
