ATTR-Amyloidosis.net GiveawayFor those living with ATTR, self-care and self-advocacy go hand in hand - it’s an important part of managing a frequently misunderstood...reactionscomments
My Experience Being a Judge for the Social Health Network AwardsI had the great privilege of acting as a judge for the Social Health Awards. Working in just one of many categories...reactionscomments
Raising Awareness About ATTR, One Conversation at a TimeSo, this is the way it usually works. Getting the word out about transthyretin (ATTR) amyloidosis. At a social gathering, a doctor's...reactionscomments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with ATTR amyloidosis often have a...reactionscomments
Living with hATTR: Get Moving…Hey, you've been diagnosed with this disease, ATTR amyloidosis. Get over it! Time to get moving and take control. Know that it...reactionscomments
Ask Questions and Connect: Forums and Resources for Supporting a Loved One With ATTRThe forums section of ATTR-Amyloidosis.net has been a place to read conversations, start discussions, and connect with other caregivers and loved ones...reactionscomments
Support Your Emotional Support Animal: How to Save On Drug Costs for PetsFor many people, pets feel like part of the family. We would do anything for them just like we would for any...reactionscomments
ATTR and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Talking With My Family About ATTR Testing: To Know or Not to KnowThe day I gathered my children was most memorable. "Hey guys," I said. They were both listening. "You know the disease that...reactionscomments
ATTR Progress and Awareness: Maybe We Are Making a Difference After AllI walked into my appointment today carrying more than my purse and a list of medications. I carried nerves. After 15 years...reactions2comments
More Than Just a Vacation: Traveling with hATTRI came home from our cruise with a suitcase full of dirty clothes, way too many pictures, a few impressive bruises, and...reactionscomments
I Believe in Research. So Why Was I Hesitant to Join a Trial?To everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. I believe in...reactionscomments
Time Moves On: Lessons for Living With ATTR AmyloidosisTime wraps me like a scratchy blanket. It has me in an inescapable harness that keeps pulling me forward. I think, "oh...reactionscomments
I’m So Glad I Went: What Happened After I Said YesIn my last article, I shared how transthyretin amyloid cardiomyopathy (ATTR-CM) had changed the way I looked at something that once would...reactionscomments
How to Handle Insurance Denials and LimitsFinding out that your health insurance company has denied a claim can be frustrating and complicated. Understanding what an insurance denial is...reactionscomments
Trail to Diagnosis… It BeginsWhat is going on? My fingertips were feeling fuzzy, my wrists hurt, and simple tasks with my hands were getting harder. The...reactions1comment
Ask Questions and Connect: 6 Forums on ATTR Treatment & ManagementThe forums section of ATTR-Amyloidosis.net has been a place to read conversations, start discussions, and connect with others about ATTR. These forums...reactionscomments
Quality of Life Polls: How are You Doing?When managing ATTR means juggling medications, treatments, and basic daily tasks, quality of life can feel like an afterthought. However, a good...reactionscomments
Discovering My Family's ATTR Story: A Chance MeetingI have the Thr60(80)Ala mutation on the TTR gene on the 18th chromosome. Pretty cool. It causes ATTR amyloidosis. Not cool. 1,600...reactionscomments
Fatigue and Slow Progression: Living Between the Data and the DiagnosisApril is always hard for me. It’s the month we make the trip to Duke, the month where scans, tests, and appointments...reactions3comments
