How to Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be...reactionscomments
Support Your Emotional Support Animal: How to Save On Drug Costs for PetsFor many people, pets feel like part of the family. We would do anything for them just like we would for any...reactionscomments
Helpful Hints for Long-Distance CaregivingBeing a caregiver can be rewarding but also draining. In many cases, caregivers and those they care for live nearby or even...reactionscomments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with ATTR amyloidosis often have a...reactionscomments
Fighting hATTR Amyloidosis: A Walk in the WoodsIt would be so easy just to stop fighting and give in, throw in the towel, lay down and let it take...reactions1comment
What Does it Mean to be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading...reactions4comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactions2comments
A Life Unfolding: The Beauty and Weight of a Slow FarewellI am blessed to be the wife of the love of my life and the proud mom of two extraordinary boys we...reactions7comments
The Quiet Way ATTR-CM Changes YouThere are moments in life when ATTR-CM doesn’t just whisper its presence—it takes your breath away. Not always in the physical sense...reactionscomments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until...reactionscomments
Carrying the WeightTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. March. Spring. Renewal...reactions3comments
My Long hATTR Amyloidosis Journey: So NOW You’ve Been Diagnosed‘Don’t panic,’ I kept telling myself, ‘There IS help.’ When I face a difficult situation, my first move is to always do...reactions2comments
The Beginning of Life After DiagnosisTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. So, there we...reactionscomments
Rare Disease Day® and ATTR AmyloidosisThe last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness...reactionscomments
My Family's Diagnosis Journey: And So, It Begins...It all started in the spring of 2002, my awareness that is. We had left our home of 15 years in Seattle...reactions1comment
The Moment Our Family Story ChangedTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. Olive Garden, early...reactionscomments
When You Don’t Fit the ATTR-CM MoldI don’t fit the mold. When people picture ATTR-CM, they often imagine an older man, maybe someone who has lived a long...reactions5comments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your ATTR diagnosis...reactions6comments
