Have you been diagnosed with Wild-type ATTR (ATTRwt)?
What do you wish others knew? This is a place for those with ATTRwt to connect and share. Your story could be the lifeline someone needs to feel less alone today. Whether it’s a question, a tip for managing symptoms, or just a word of encouragement, your voice matters.
What tests did you have done to get the diagnosis of ATTR wild-variant?
, You can check our article on diagnosis https://attr-amyloidosis.net/diagnosis, and also I found this article that may be helpful:
https://pmc.ncbi.nlm.nih.gov/articles/PMC7434568/#:~:text=To%20diagnose%20ATTR%2C%20clinicians%20may%20need%20to,*%20Fibril%20disrupters%20*%20Inotersen%20*%20Patisiran
I hope those can answer your questions. - Warmly, Donna (Team Member)
Wild type ATTR CM and PN.
, thank you for sharing and we're glad you found us! Warmly, Donna (Team Member)
Yes
Yes; Amvuttra and Vyndamax are currently meds. 1 year into the adventure. ATTR-CM and ATTR-PN. 86.9 years old.
, 86.9 is pretty good! How are you feeling? - Warm;y, Donna (Team Member)
