Forums

Read conversations, start a discussion, and connect with others about ATTR Amyloidosis.

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I was unexpectedly diagnosed with the wild type Amyladosis

I was unexpectedly diagnosed with the wild type Amyladosis in 2017; and given two years to live being 85 years old. They...

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What do you wish others knew about ATTR?

There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the...

Active 4 days ago

Do you have a pet?

Furry companions can help comfort, distract, or make you laugh. Do you have a pet? Tell us about them (and share a...

Active 7 days ago

Are you an adult child of a parent with ATTR?

Caregiving can take on many different definitions, especially if you are navigating the space between being a child and a caregiver to...

Active 8 days ago

Have you been diagnosed with Wild-type ATTR (ATTRwt)?

What do you wish others knew? This is a place for those with ATTRwt to connect and share. Your story could be...

As the commercial for ATTR-CM states its time to start living!

Diagnosed, how to slow progress?

I was diagnosed after carpal tunnel surgery last January. I have wild type, went through heart test, lung scans, blood tests. As...

How does caregiving impact your life?

Caregivers who support their loved ones take on an emotional task, but it can also be rewarding and deepen your connection. How...

Weighing treatment options?

What do you keep in mind when you're deciding on a treatment? Many are coming to these forums with a new diagnosis...

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What are some lingering questions you have?

All questions are safe here. What ATTR-related topics would you like to know more about? Please post your question here, and our...

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