Forums

Read conversations, start a discussion, and connect with others about ATTR Amyloidosis.

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What are your experience with ATTR-PN? How do you cope with polyneuropathy?

We have been hearing from readers dealing with polyneuropathy, wondering about how much worse it will get and how to cope. Share...

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Are you coping with fatigue?

What are your fatigue symptoms? How do you cope? Fatigue can be isolating. Connect here with others living with ATTR and learn...

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Have you been diagnosed with Wild-type ATTR (ATTRwt)?

What do you wish others knew? This is a place for those with ATTRwt to connect and share. Your story could be...

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Welcome! Please Introduce Yourself.

Welcome to our community! We’d love to learn a little about what has brought you here....

Active 2 days ago

Which symptoms frustrate you most, and how do they affect your day?

ATTR amyloidosis can affect the nerves, heart, digestive system, and more – sometimes all at once. Numb or painful feet, a pounding...

FeaturedActive 8 days ago

What do you wish others knew about ATTR?

There are plenty of misconceptions and a lot of unknown information about ATTR amyloidosis. What's something you wish people understood about the...

Digestive issues

My biggest issue is stomach upset. I have diarrhea and constipation I take Linzess but it doesn’t seem to help. My doctor...

What's your relationship to your care team like?

The people who really should "get it," outside of others living with ATTR, are our healthcare professionals. But that's not always the...

My strongest support is _______.

This is your chance to call out the people, organizations, or even pets who have helped you in your ATTR journey....

Shortness of breath

Every day is different with my shortness of breath. When I am sedentary I can have a lengthy conversation, as soon as...

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