What's your relationship to your care team like?
The people who really should "get it," outside of others living with ATTR, are our healthcare professionals. But that's not always the case. ATTR is rare, and many people see several doctors before getting a diagnosis. Even after diagnosis, some providers may not know much about the condition. It's okay to feel disappointed or aggravated by doctors.
My care team is great. It starts with my wife, my family, the dogs and of course the health care pros that monitor it all.
, that sounds like a stellar team - taking care of physical, medical and emotional needs! - Warmly, Donna (Team Member)
