Have you been diagnosed with Wild-type ATTR (ATTRwt)?
What do you wish others knew? This is a place for those with ATTRwt to connect and share. Your story could be the lifeline someone needs to feel less alone today. Whether it’s a question, a tip for managing symptoms, or just a word of encouragement, your voice matters.
What is life expectancy after diagnosis?
, Life expectancy varies greatly based on type, and how early treatment is started. Your doctor will be able to privide an estimate based on individual circumstances. Have you or a loved one been diagnosed? - Warmly, Donna (Team Member)
Do you have any symptoms of carpal tunnel?
I had a cardiac arrest and I couldn't walk i go to a heart failure clinic and the Dr. Sent me to have a MRI because I kelp falling for no reason.
And that's b ow it was discovered I'm so confused about this know one is really telling me anything, you deserve a team that answers your questions and helps you feel confident with your treatment plan. Here are a few articles that may help:
https://attr-amyloidosis.net/living/doctor-questions
https://attr-amyloidosis.net/living/advocating-doctorhttps://attr-amyloidosis.net/living/second-opinion
https://attr-amyloidosis.net/living/coping-new-diagnosis
https://attr-amyloidosis.net/living/second-opinion
If you have any questions, please don't hesitate to let us know. We have patient leaders who have likely been where you are and can share their experience. - Warmly, Donna (Team Member)
Hattr what are my symptoms
Hi
, welcome! You can find more about the symptoms here: https://attr-amyloidosis.net/symptoms. What symptoms are you experiencing? - Warmly, Donna (Team Member)
