Are you an adult child of a parent with ATTR?
Caregiving can take on many different definitions, especially if you are navigating the space between being a child and a caregiver to your parent. Share your thoughts, and connect with others.
My journey with doctors concerning my Amyloidosis treatment has been frustrating. Has anyone been prescribed the medication Wainua
I'm a caregiver for mother that has ATTR-CM and I also have ATTR-CM
, does taking care of your mom help you understand more about your own experiences? - Warmly, Donna (Team Member)
This ATTR-Amyloydosis net community is a blessing it's very informative in information and community is so supportive thank you.
, we're glad you're her and that you're finding some helpful information. - Warmly, Donna (Team Member)
My mother's heart has improved improved tremendously as her cardiologist prescribed Verquvo has been about 1 year.I'm seeing a new cardiologist then the one who diagnosed the condition. Haven't started any treatments for condition but have been having some of symptoms like carpal tunnel,gastric issues, swelling legs& feet while being caregiver for mother.
I really can't thank you enough for sending those resources. Finding clear information on support can be overwhelming, and your help has given me a much clear path forward. I really appreciate your kindness.
, you made my day <3 Thank you! I'm so glad the resources are helpful. Please keep us posted on how things are going. - Warmly, Donna (Team Member)
