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Are you an adult child of a parent with ATTR?

Caregiving can take on many different definitions, especially if you are navigating the space between being a child and a caregiver to your parent. Share your thoughts, and connect with others.

  1. This ATTR-Amyloydosis net community is a blessing it's very informative in information and community is so supportive thank you.

    1. , we're glad you're her and that you're finding some helpful information. - Warmly, Donna (Team Member)

  2. My mother's heart has improved improved tremendously as her cardiologist prescribed Verquvo has been about 1 year.I'm seeing a new cardiologist then the one who diagnosed the condition. Haven't started any treatments for condition but have been having some of symptoms like carpal tunnel,gastric issues, swelling legs& feet while being caregiver for mother.

    1. I really can't thank you enough for sending those resources. Finding clear information on support can be overwhelming, and your help has given me a much clear path forward. I really appreciate your kindness.

    2. , you made my day <3 Thank you! I'm so glad the resources are helpful. Please keep us posted on how things are going. - Warmly, Donna (Team Member)

  3. I'm a caregiver of my mother that has ATTR-CM also recently have I have been diagnosed too having disease.

    1. My mother is doing great heart condition has improved when last visit to cardiologist a month ago
      thank you for concern.

    2. , so glad to hear that! How are you doing? - Warmly, Donna (Team Member)

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