Welcome! Please Introduce Yourself.
Welcome to our community! We’d love to learn a little about what has brought you here.
I was recently diagnosed with wild ATTR in my lungs and am in the process of determining whether it’s in my heart. My nerves have also been affected with severe neuropathy in my hands and feet. I would be interested in establishing a dialog with others in the same boat. I am learning that it seems to be rare to have it in the lungs and that medication is not available unless you have it in your heart. Disheartening!
Hi! I am Faye, and I am living with ATTR and have a mission to educate and put a name and face to this disease. I can not wait to connect to everyone here!
