My Family's Diagnosis Journey: And So, It Begins...It all started in the spring of 2002, my awareness that is. We had left our home of 15 years in Seattle...reactions1comment
Rare Disease Day® and ATTR AmyloidosisThe last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness...reactionscomments
The Beginning of Life After DiagnosisTo everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment. So, there we...reactionscomments
A Life Unfolding: The Beauty and Weight of a Slow FarewellI am blessed to be the wife of the love of my life and the proud mom of two extraordinary boys we...reactions2comments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with ATTR amyloidosis often have a...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your ATTR diagnosis...reactionscomments
What Does it Mean to be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading...reactions2comments
How Do I Get the Latest Updates on ATTR-Amyloidosis.net?The internet is rife with information on ATTR amyloidosis. Unfortunately, sometimes it can get to be a little too much. Perhaps it...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical...reactionscomments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactionscomments
ATTR-Amyloidosis.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on ATTR-Amyloidosis.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
