Forums

Read conversations, start a discussion, and connect with others about ATTR Amyloidosis.

Are you coping with fatigue?

What are your fatigue symptoms? How do you cope? Fatigue can be isolating. Connect here with others living with ATTR and learn...

What are your experience with ATTR-PN? How do you cope with polyneuropathy?

We have been hearing from readers dealing with polyneuropathy, wondering about how much worse it will get and how to cope. Share...

Yes

No, I’m the first one in my entire generation to be diagnosed with hATTR

No

Vyndamax

How is congestive heart failure diagnosis and is taking Vyndamax ,or other name, Tafidimis , help...

Do you struggle to advocate for yourself at your doctor's appointments?

Living with a rare condition like ATTR can be a long road to diagnosis, finding the right treatment, and finding a care...

Weighing treatment options?

What do you keep in mind when you're deciding on a treatment? Many are coming to these forums with a new diagnosis...

I was unexpectedly diagnosed with the wild type Amyladosis

I was unexpectedly diagnosed with the wild type Amyladosis in 2017; and given two years to live being 85 years old. They...

As the commercial for ATTR-CM states its time to start living!

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