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Vyndamax

How is congestive heart failure diagnosis and is taking Vyndamax ,or other name, Tafidimis , help...

Do you struggle to advocate for yourself at your doctor's appointments?

Living with a rare condition like ATTR can be a long road to diagnosis, finding the right treatment, and finding a care...

Weighing treatment options?

What do you keep in mind when you're deciding on a treatment? Many are coming to these forums with a new diagnosis...

Are you an adult child of a parent with ATTR?

Caregiving can take on many different definitions, especially if you are navigating the space between being a child and a caregiver to...

I was unexpectedly diagnosed with the wild type Amyladosis

I was unexpectedly diagnosed with the wild type Amyladosis in 2017; and given two years to live being 85 years old. They...

As the commercial for ATTR-CM states its time to start living!

Diagnosed, how to slow progress?

I was diagnosed after carpal tunnel surgery last January. I have wild type, went through heart test, lung scans, blood tests. As...

How does caregiving impact your life?

Caregivers who support their loved ones take on an emotional task, but it can also be rewarding and deepen your connection. How...

Happy New Year...

What's one thing you are looking forward to in the new year?...

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